Macdonalds. Goodies or Baddies?

We are three weeks into the summer holidays. Halfway through! We’ve been keeping busy with the boys and making the most of our days off and so far it’s been ok. More than ok actually, we’ve had some really good days.


This summer I set myself a little challenge to see how long we could go without going to Macdonalds! The truth is, I have a love/hate relationship with ‘The Big M’. I’m a vegetarian, I think their food is full of crap and the wasteful packaging is an environmental disgrace….but for a long time it was the only place we could take the boys where they would actually eat. It was the first place they ate potato. I’m not sure that we would have ended up where we are now with James eating jacket potatoes with real skins(!!) if we hadn’t had that starting point. It’s not just the food though. No one in Macdonalds gets the arse if your child chucks their food all over the floor. It just gets swept up. It’s also a place we can go in the car when it’s been raining all weekend and we need to get out of the house before we all lose the plot. Sometimes we even do a long drive to far away drive throughs! I’m grateful to have that option and their coffee really hits the spot on those days.


The thing is though, the boys have recently moved forward. They are much more flexible with the food they will eat and we have been enjoying relatively calm behaviour for a few weeks. I realised that we could actually try going somewhere else! In fact, we were in danger of getting stuck in a rut when the boys were ready to move on. 

So for the past few weeks I’ve tried to think of other places to try eating out. Nothing really fancy, just a few little cafes where we could go after a walk and have a bowl of chips or a toastie. Charlie has also been going out for a second breakfast with his carers some weeks. Both boys have responded really well to trying new places and it’s been nice to eat real food! 


Yesterday, I caved in! We’ve had a lot of late nights and early mornings this week and it was the right day to make the choice to have a local walk and an easy lunch. I think they enjoyed it more because they haven’t had it so much (they did go from respite the other day)! 

We will keep moving forwards and leaning towards choosing other places at the times that are right to do that. I’d rather we went elsewhere but I don’t think we will ever give up going to ‘that place’ completely either. Behaviour may set us back again and I don’t want to take away something that the boys enjoy either, there’s not much in life that we can give them as a treat. My days of perfect parenting and trying to be an ‘earth mother health freak super woman’ are long gone – actually I just ate a bar of galaxy for my lunch 😂 The space we have occupied for the past few years is about survival, compromise and ease. Going only once in a whole month sits a lot better with me than going every week though. 

So there it is. I will always be on the fence about the place, as much as I want to say they’re baddies, our lives would have been a lot more difficult without them on those rainy days.

Last Weeks Photos

I had a fairly quiet week last week. I’m trying really hard to rest and not do a lot so it was a challenge to find new things to photograph. I got fairly into my flowers! I have pretty much given up on my garden over the last few years. I haven’t been able to plant much that the boys won’t pull up, hanging baskets get swung around and gardening ended up being extra work that I decided I didn’t need. I think I finally accepted that last year, so my boys being how they are, have decided this is the year to show me that maybe they will leave some of my plants alone!! I’m still aiming to keep my garden work minimal though. I have roses and because my winter hanging baskets got left alone, I’ve popped some marigolds in with a bit of fresh compost and the ivy. The rest is patio, lawn and trampoline and basically, what my boys need in a garden is space to roam. I will get back into more elaborate gardening when I’m ‘retired’, in the meanwhile I’ll enjoy my roses! The agapanthus is the real miracle. I put it in 8-9 years ago and every year the potential flowers have been pulled out before there was hardly even a bud. Check out the flower it has right now!….




Flowering ~ Budding ~ Companions ~ Growth ~ Emerging

Resting


It’s Monday morning and I’m sitting in peace and quiet drinking a cup of tea. It’s one of my favourite things about when the boys are at respite care – being able to get up gently, put the kettle on and actually sit still while I drink my first drink of the day. I’m not a morning person and despite years of having to get up, be alert and on the go from the moment I wake or get woken, I’m still not a morning person!

This weekend has been a deliberately quiet one. I haven’t been well for a few weeks and have had a few investigations resulting in my getting told I’m old and tired! I feel like this is a new thing now I’m 40 – when I’ve had these symptoms looked into before (I’ve  been like this for 4-5 years now) I’ve been told it’s stress! Either way, the general assumption is that I’m getting ill because of my lifestyle as a carer. I’ve got to be honest, this makes me feel pretty crap. Besides the worry that there actually is something wrong and they won’t see it because they see ‘tired, stressed carer’, I can’t help but come to the conclusion that if I am not ill then I must just be a bit ‘weak’ and useless. I know this is ridiculous because what we are doing here with our boys is phenomenally above and beyond ‘normal parenting’ but as a mum, I feel like I should be able to manage it without my body giving out. One thing I have pondered though, is the question, ‘Is my body giving in because my head and heart keep going?’ In other words, I think my body is enforcing rest on me! 

So apart from sorting prom shoes out and getting lunch with Ellie and a trip to the cinema to see the new Independence Day film, I have tried to sit still and rest. It is hard because often, our only chance to do bigger jobs in the garden or decorating is on these weekends we get off. It’s a balance between ‘doing’ and ‘not doing’.

I get nowhere with my GP regarding my health so I have had to make lifestyles changes to try and improve things for myself. It’s hard to do anything too radical under our current circumstances and I’m looking for things I can do which are realistic for me. Some things I am currently trying to help feel a bit better are

• Eating a Gluten Free Diet

• Aromatherapy, baths, massage, and diffuser

• Epsom salt baths

• Meditation 

• Supplements of magnesium, probiotics, vitamin D and a general multivitamin.

• Getting very clear on what, who and where I spend my energy

I’m finding it quite hard to keep up the meditation practice but it really does help. 

Also, knitting and crochet 😊 I’m involved in a secret project at the moment so I’ll end with a teaser of that!

 

Hello! Welcome to my new blog. I’m going to be blogging about ‘all my things’ – knitting, painting, photography, caring, books, the occasional political rant! I’m a mum of 3 teenagers and my twin sons have severe learning disability and autism. My days are spent caring for them and finding ways to enjoy life with them and around them. 


This year I set myself an Instagram challenge of taking a photo a day. I feel quite pleased with myself for keeping this up at least half way through the year although it’s not really that difficult. I love taking photos and Instagram is the one social media platform that I consistently enjoy. 

Although I love taking photos, I’m not particularly ‘good’ at photography or interested in the technical side of it. I set myself this challenge to improve my photography a bit but mainly to help me with my art – finding inspiration, noticing shapes and colours etc and because I find it really helpful as a way of noticing the positive/happy/beautiful things in my life. Particularly when things get a bit shit, which they inevitably do when you are trying to care for people with challenging behaviours and find/fight for the services they need. 

Here’s some favourites from earlier in the year.


I’m going to do a weekly post of my photos for the rest of the year, but I’ll finish with this rather gloomy image I took of some pigeons that fly around in circles over my son’s school every day. Not the photo I would of liked to be taking on this auspicious day of light with it being the summer solstice and full moon but it has been grey here all day so I’m going with ‘what is’!